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Access to Clinical Data for Research

Access to Clinical Data for Research

CTSI provides researchers with access to clinical data from Froedtert Health & Children’s Wisconsin. Each organization has its own research data toolset.

Froedtert tools include the Clinical Research Data Warehouse (CRDW) and an Image De-identification Service Center, while Children’s is currently limited to the CRDW.

These self-service CRDWs integrate health information from electronic health record systems as well as other valuable data resources such as legacy billing from GE/IDX, the MCW Tissue Bank, and NAACCR tumor registry.

  • Cohort discovery query tools, i2b2 and TriNetX, enable HIPAA-compliant de-identified querying of clinical information to generate counts and patient sets
  • Honest Broker tools allow unlimited extraction of curated data domain tables in fully de-identified format and facilitate PHI extract requests for researchers with approved IRB protocols
  • Jupyter Hub offers the power of a computational environment to researchers with advanced data science skills, allowing them to independently query and analyze encrypted Honest Broker tables directly

HOW TO REQUEST CRDW CONSULTATION/DATA

255 KBResearch Data Access Instructions

 

LEARN MORE ABOUT CTSI IMAGE DE-IDENTIFICATION SERVICE HERE

NIH Funding Acknowledgment: Important Reminder – Please acknowledge the NIH when publishing papers, patents, projects, and presentations resulting from the use of CTSI resources by including the NIH Funding Acknowledgement.

PARTNERS

Children's Hospital of WisconsinMarquette UniversityMSOEUWMVersitiVA Medical Center