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Save the Date: European Reference Networks For Rare Diseases Webinar

Save the Date: European Reference Networks For Rare Diseases Webinar

NCATS Office of Rare Diseases Research (ORDR) will be hosting a webinar on the European Reference Network on Rare Neurological Diseases (ERN-RND) on Wednesday, Sept. 13, 2017. Holm Graessner, Ph.D., MBA, Coordinator, ERN-RND, and Enrique Terol of the European Commission will be presenting.

Please save the date: Wednesday, September 13, 2017, from 10 -11 a.m. ET.

Click here to register for the webinar.

The purpose of this presentation is to provide information on the European Reference Networks (ERNs) for Rare Diseases, and to explore potential areas for research collaboration with the European Union. The ERNs are virtual networks involving healthcare providers across Europe, whose aim is to tackle complex or rare diseases and conditions that require highly specialized treatment and concentrated knowledge and resources. The ERNs are organized around a range of thematic issues, such as bone disorders, childhood cancer, and neurological diseases. There are currently 24 ERNs within the European Commission, involving more than 900 highly-specialized healthcare units from over 300 hospitals in 26 member states.

Investigators, clinicians, and professional staff from the CTSA Program hubs with an interest in rare diseases and forming international research partnerships are especially encouraged to attend. Please contact Kinshasa Letts at NCATS should you have questions or need assistance with registering and/or participating in the Webex.

NIH Funding Acknowledgment: Important Reminder – Please acknowledge the NIH when publishing papers, patents, projects, and presentations resulting from the use of CTSI resources by including the NIH Funding Acknowledgement.


Children's Hospital of WisconsinMarquette UniversityMSOEUWMVersitiVA Medical Center