21 Aug Discovery Radio – Episode #76: International Sickle Cell Disease & COVID-19 Registry
When the COVID-19 pandemic hit the US, a researcher who focuses on sickle cell disease (SCD) was concerned. So, she assembled a team to create a registry of SCD patients who’ve contracted COVID-19. Learn about a SCD/COVID-19 registry that’s now international in scope and hope of providing better outcomes, inside this edition of CTSI Discovery Radio!
Guests
Julie Panapinto, MD, MSPH, FAAP
Professor, Department of Pediatrics, Division of Hematology & Oncology-Pediatrics, MCW; MACC Fund Center for Cancer & Blood Disorders, CW
Amanda Brandow, DO
Associate Professor
Department of Pediatrics, Division of Hematology & Oncology-Pediatrics, MCW; MACC Fund Center for Cancer & Blood Disorders, CW
Bradley W. Taylor, FAMIA
Chief Research Informatics Officer
Clinical & Translational Science Institute of Southeast Wisconsin (CTSI), MCW
More Information
- Surveillance Epidemiology of Coronavirus Under Research Exclusion Overview (SECURE) COVID-19-Sickle Cell Disease (SCD) Registry
https://covidsicklecell.org/ - Coronavirus Disease among Persons with Sickle Cell Disease (Abstract), Centers for Disease Control & Prevention (CDC)
https://wwwnc.cdc.gov/eid/article/26/10/20-2792_article - People with Certain Medical Conditions at Increased Risk for Severe COVID-19 Illness, Centers for Disease Control & Prevention (CDC)
https://www.cdc.gov/coronavirus/2019-ncov/need-extra-precautions/people-with-medical-conditions.html#hemoglobin-disorders - Department of Hematology, Oncology, Blood & Marrow Transplant, MCW https://www.mcw.edu/departments/pediatrics/divisions/hematology-oncology-blood-and-marrow-transplant
- COVID-19 Coronavirus Information, MCW
https://covid19.mcw.edu/ - Sickle Cell Research Program, Children’s Wisconsin
https://childrenswi.org/medical-professionals/research/research-centers-and-programs/vascular-biology-and-hematology-research/sickle-cell-research-program - Sickle Cell Disease Association of America
https://www.sicklecelldisease.org/ - American Society of Hematology
https://www.hematology.org/